I’ve learned to take advantage of the good days, when my burning lip pain is only around a 3 or 4 out of 10, because I know they don’t last. The pain is gradually climbing. Last night was painful, this morning was meh, now it’s painful again.

Living with BMS has its problems, aside from pain. This afternoon I had to give an online presentation that was being recorded. I wanted to look nice and I put on some make-up – but it’s hard to feel polished without lipstick. I just can’t tolerate it. Talking – animatedly – for an hour is hard. I can take some sips of water, but have to avoid applying Aquaphor to my lips. In a more casual presentation, I do, but not for professional ones. I’m feeling a bit sorry for myself today!